Individuals and organizations can host an independent fundraising event where proceeds benefit the G1DF. These can be grateful patients and families, civic organizations, churches, schools, businesses, government agencies - anyone in the community can hold an event to support the mission of the G1DF.

The GLUT1 Deficiency Foundation needs to evaluate each potential partner, organization or new initiative before agreeing to a relationship to ensure it is a good fit with our mission and vision and serves the best interests of the GLUT1 Deficiency community.  The Fundraising Event Proposal Form provides important details so the G1DF can confirm the organizer’s intent and have the details needed to understand and better support the event. 

The G1DF is prohibited from engaging in political activities or endorsing candidates or parties, so any events of a political nature cannot be approved.

Listed below are ways the G1DF can help with your fundraiser:

• Provide consultation on fundraisers and events
• Provide letters to validate the authenticity of the event and its organizers
• Provide and approve the use of our logo 
• Provide brochures and other resources for your event
• Help promote your event

We are here to support you. However, there are some services we are unable to provide:

• Our sales tax exemption number for tax exempt purchases
• Insurance or liability coverage
• Mailing lists of donors and/or vendors
• Glut1 Deficiency Foundation stationery
• Direct funding or reimbursement of event expenses
• Paid publicity

Once your fundraiser is approved, we will provide you with our logo for your marketing materials - including the official GLUT1 Deficiency Foundation logo and/or the Love Some1 with GLUT1 logo. We do need to review and approve all materials bearing our name and logo before they are printed or distributed, including use on websites.

The G1DF invested in the creation of logos and materials to create a professional and reputable image of the G1DF and to spread awareness in a consistent way in the community. Official GLUT1 Deficiency Foundation logos are available upon request for use in your fundraiser and can be provided once your fundraiser is approved.

The GLUT1 Deficiency Foundation also has a limited number of brochures, buttons, bracelets, pens, and a banner that can be provided for your event.  Please keep in mind that all marketing materials are created at a cost to the G1DF, so just please help us make sure they are well-utilized and return any unused materials after your event.

Because there are so many different types of fundraiser, the following is a good general format to follow:

• First paragraph: Introduce yourself, your child, and your purpose for writing (details of your fundraising event)

• Middle paragraph(s): Provide more details about GLUT1 Deficiency and the Foundation.  Include the foundation’s mission statement (www.G1DFoundation.org) and how important donor/participant support is (this can be divided into two paragraphs if need be)

• Last paragraph: Explain exactly what it is you want your letter recipient to do and how they can do it.

Making a webpage for your fundraiser is a great way to get the word out about your event and to facilitate giving.  Webpages make it easy to communicate to large groups of people and provides for easy payment methods.  Best of all, there are readily available resources that make personalizing a webpage and fundraising online very easy, some of these include:  Crowdrise, Razoo, Facebook Events, and Gofundme.  The GLUT1 Deficiency Foundation uses the Givebutter donor platform and has the capability of making customized event pages for you upon request.  

Donations are accepted online or by US Postal Mail:

• US Postal Mail – Checks can be sent to the Foundation at: The GLUT1 Deficiency Foundation, PO Box 737, Owingsville, KY  40360 USA.

• Online donations are accepted by credit card or PayPal at the Foundation’s donation page: www.G1DFoundation.org/donate.
• The Foundation also conducts an annual fundraiser in February where individual families create personal web pages.  Credit card donations are also accepted through these personal fundraising pages in February and throughout the year.

• The GLUT1 Deficiency Foundation participates in Facebook fundraising activities.  Donations may be made on our Facebook page or people may choose to do a personal fundraiser on Facebook to benefit the GLUT1 Deficiency Foundation.

Yes. The GLUT1 Deficiency Foundation is a non-profit organization recognized by the IRS. All donations are used toward the Foundation’s mission of increased awareness, improved education, advocacy for patients and families, and support and funding for researchers.

The Glut1 Deficiency Foundation is incorporated in the State of Indiana and is recognized by the IRS as a charitable organization under tax code 501 c3.

Tax ID number is: 45-2190535.  

Under most circumstances, donations to the Glut1 Deficiency Foundation are tax-deductible providing no goods or services were exchanged for the donation.

The GLUT1 Deficiency Foundation works to provide help and hope for the GLUT1 Deficiency community in many areas through our mission programs. More details on how funds are allocated can be found on our financial documents on the website.

If you have a passion for a specific area, we will work with you to ensure your donation or fundraiser proceeds go directly to that area.

There are many ways to inform potential donors about the Glut1 Deficiency Foundation.

• Direct potential donors to the website: www.G1DFoundation.org. The website is full of useful information about GLUT1 Deficiency, the mission statement of the Foundation, as well as recent and ongoing projects that the Foundation is involved with.

• Direct potential donors to the Foundation’s Facebook page which contains all the latest news from the Foundation and the GLUT1 community.

• Provide donors with a brochure containing information about GLUT1 Deficiency and the G1D Foundation. Brochures are available on the web-site in pdf format in English, Spanish and Dutch. Hard copies of the English and Spanish versions of the brochure are available upon request. Please contact [email protected]

Just ask. Most people are generous and are willing to give to charitable organizations. Research finds that donors are motivated because it makes them feel good and they like to be recognized.  The most difficult hurdle for most fundraisers is the “asking”; but what our experience tells us is that once people get over that hurdle, they find a great satisfaction and love for their fellow man when they see the generosity that most often follows. So ask, and say “Thank You”.  Some will say no, but that’s okay – and a great many will surprise you with their gifts.

The GLUT1 Deficiency Foundation cannot issue charitable tax receipts for any payments made directly to your third-party event. If donations are made directly to the G1DF at your event and the donor would like to have a receipt, please be sure the donation check is made payable to the GLUT1 Deficiency Foundation and the donor's name and address appear on the check.

Please note that there are complex regulations around fundraising and the distribution of charitable tax receipts. The G1DF has the honor of being recognized as a tax-exempt charitable organization by the IRS (Internal Revenue Service).  Any failure to follow these regulations can put our charity status, and our mission, at risk.  

For more information and questions about any specific activities, please contact the GLUT1 Deficiency Foundation or your tax advisor.

One of the most important things you can do is send a thank you (and the more personalized the better). Donors are much more likely to become repeat donors if you show your appreciation and reassure them that giving to the G1DF was a good decision.

Consider the following when you write your thank you note for someone who has supported your fundraising efforts:

1. Explain why the donation was so important to you and your family.
2. Tell your donor what a difference their donation is going to make.
3. Educate your donor on where the funds go.

All online and U.S. Mail donations will receive both a tax receipt and a “Thank You” letter from the G1DF.

Glenna Steele, Executive Director:  [email protected]
​April Breen, Fundraising Director:  [email protected]

• Join the annual Love Some1 with GLUT1 Campaign! It is easy and the template is prepared for you. All you have to do is ask friends, family, etc. If you missed the annual February campaign this year, make an effort to join next year. Together we can do so much more than any of us can do alone.

• Shop to support the GLUT1 Deficiency Foundation through special merchandise on our store on Bonfire. Find out more here!

• Volunteer!  The GLUT1 Deficiency Foundation welcomes your time, your ideas and your unique talents.  Find out more here!

• And finally…Use your VOICE to help spread the word about GLUT1 Deficiency and the G1DF.  All of us can help bring about more awareness and education of GLUT1 in our everyday lives and through social media.